Monday, June 6, 2005

Just horrible

Hai just linked me to an open letter concerning an "Applied Behavioral Analysis" program and how it traumatized a four-year-old autistic child.

We believe it to be particularly destructive of a child's emotional development that hugs and kisses, gestures we normally use to express affection and love, are used instrumentally in many behavioral programs. The child is required to give and to receive these gestures as part of the training, without regard to his or her actual feelings. These "behaviors" will therefore come to have a different meaning for your child. Your child may develop obsessive-compulsive behavior in this area if he or she is in an ABA program that is similar to the one we had, since the meaning of a behavior comes out of the context it is most used in. Hugs and kisses, in the program we had, meant "I surrender (my project of autonomy, my understanding of my pain, my resistance to your will, my attempt to obtain freedom to pursue my intrinsic interest in this toy or manipulative)." They meant "I seek safety in this behavior" of performing the required hugs and kisses, because "I have learned that then the pain will stop (and so will my right to choose who will receive my affections)."
I start to cry just reading that paragraph.

We have come to believe that the attempt to eliminate a targeted "behavior" by responding to it in a discouraging way (or not responding at all) is very dangerous. Keep in mind that what is being extinguished is not simply "a behavior": when this occurs with human beings, as opposed to the animal studies where the term originated, the process is much more complex. What is suppressed is "a choice," and that implies a deep internal restructuring of the child's understanding. If the behavior to be extinguished was his way of communicating distress, he may learn that he should not seek comfort when he hurts. He may learn that he should hide pain and somatize it (e.g. develop other symptoms such as stomach aches). He may conclude he is not loved. He might even become so alarmed that he develops symptoms of PTSD [Post Traumatic Stress Disorder] as our son did.

[...]

We believe that one of the primary reasons our son's PTSD is so severe and so persistent is that the assault on his body, in the form of restraint that was painful and terrifying, took place in the sanctity of his own home. Home is the place that must be safe, that must be the place of rest where we let down our guard, and must be the place where we feel protected. It is a fact that some of the most severe cases of PTSD occur when the assault took place in the victim's own home, because where there exists a deep expectation of safety it is most traumatic to have it suddenly violated.
There's a lot more in that letter, and elsewhere on the CIBRA (Children Injured by Restraint and Aversives) website.

I am just appalled.

I've never taken any psychology courses, so I can't speak to the validity of these arguments, but restraining a child, punishing him for expressing his hurt and fear, refusing to indulge his interests and instead leading him along like a dumb animal...I have trouble understanding how any of that is supposed to help him mature emotionally and intellectually.

Maybe it isn't. Maybe it's just supposed to make him shut up.

2 comments:

Anonymous said...

I can't leave this one without commenting on it.

Applied Behavior Analysis, or ABA, is --in my educated opinion-- an extreme form of conditioning for the child with autism. True enough, that for the most part, children with autism do not relate socially or communicatively on the same level as the child without autism, but I fully believe that children with autism still have feelings and valid emotions, they just have a harder time relaying those feeling and emotions to those around them. (There was a fascinating piece on CNN a couple of weeks ago, a young woman with autism has learned to communicate with society on "our" level, and has been an insiteful fountain of information for those caring for people with, and those suffering with, autism.) Social and emotional validation are unfortunately NOT part of ABA. ABA uses a lot of "drilling" the child for long periods of time, during which the child can become restless, disruptive, aggressive, what have you. Frankly, who WOULDN'T get this way if you had to watch flashcards for hours on end? I know I'D get fed up pretty quickly.

Seeing as children with autism are at a deficit for effective learning in the average classroom, there are different programs of education for these kids. ABA is one of them, but there are other, less "trained dog" methods of teaching children with autism. Judevine is one of these less militaristic methods. I have been trained in the use of the Judevine method with children with autism, and have used it extensively in an autistic classroom. The success rate with Judevine SEEMS to me (I don't have any formal research to back this up) to be much higher, and incidents of beavioral outbursts SEEM to decline for children trained with Judevine. Judevine is actually more work for the instructor, in that you simply MAY NOT GIVE IN to the child's begging or tantrums, but instead must hold yourself to accepting from the child ONLY what is expected from the child in that given circumstance. This may seem harsh, but it's not. Simply, you state to the child what you are expecting, (there is a rewards system with Judevine, but frankly WHAT PERSON who works with children does NOT have an awards system? After all, haven't we ALL promised one thing or another for a good report card?) and when they do the expected task, they are rewarded. Eventually the child is weaned of expecting this reward EVERY time, and with the occasional reward, they will do what is expected of them without question. The principle of Judevine is a very effective method with ANY child, really, autistic, or not.

Mind you, as everyone is different, some children with autism CAN benefit from ABA training; however, I feel the majority of children with autism can be successfully taught with the less severe methods which Judevine embraces.


Some links on the subject:

http://rsaffran.tripod.com/whatisaba.html

http://seab.envmed.rochester.edu/jaba/

http://www.judevine.org/

http://groups.msn.com/TheAutismHomePage/judevine.msnw

And as for bodily physical restraint of children with autism, there is a right way, and a wrong way. The only reason restraint should ever be used is if the child (or adult) with autism is in danger of hurting himself or others, and there are numerous training programs for the correct restraining of these individuals.

http://www.autismriskmanagement.com/id10.html

Heather Meadows said...

Thanks for all the information, Brookie!