Wednesday, September 22, 2004

The missing ovaries

When I told my mother-in-law that I had an ultrasound today, she asked if it was going to be the one where they went inside. I said I didn't know. She wished it wouldn't be, for my sake; she said, "It doesn't hurt, but it's...uncomfortable." I told Mari a few days later, "I hope it isn't the invasive one."

When I went to the screening room today, the first thing the technician said was, "Have you ever had a vaginal ultrasound before?" So much for that.

I stripped waist down, lay flat on my back with my ass dangling and my feet up in stirrups, and cringed as a long white probe (wearing a wet condom) was shoved up inside me. Later, I would reflect that this must be what heterosexual sex for lesbians is like. At the time, all I was thinking about was ignoring the fact that it was unpleasant.

I expected it to last a few minutes, like a regular GYN exam, and then the discomfort would be over. So when the exam went on and on, with the technician pressing against my lower belly and forcing the proboscis around in ways that brought tears to my eyes, I was not particularly happy. I had no idea when it was going to end, and it felt like she was doing the same things over and over.

It turns out that she was.

Eventually she called "Dr. Judy" over. I started to feel a little worried. "I'm just going to have her look," the technician said when I asked if something was wrong. After a few minutes of watching the screen while the technician moved the probe around, Dr. Judy had me press down on my own stomach while she did the exam herself. From their murmured conversation which I could barely hear, I figured out what was going on.

"Can't see my ovary?"

The technician pulled the probe out. "Sure can't," she said. "Sometimes that happens."

After a pause, I responded, "But the other one was okay?"

"Actually, we can't see either one of them." She didn't sound particularly bothered by this. "There's a lot of stuff in there that gets in the way," she explained. "I'm going to look from the outside." She removed the stirrups, raised the foot of the bed, had me straighten my legs, and lubed up the normal ultrasound device, the one that feels like a steamroller.

"After my exploratory lap, the surgeon apparently told my mother that my ovaries were fine," I said.

"Oh? When was that?"

"...1998."

She began rolling the thing over my pelvis. It was far less uncomfortable than the vaginal probe, but now I was edgy. She shoved it across the middle, then either side, and then finally pulled it away. Something about her manner clued me in.

"My ovaries are still there, right? They haven't, like, spontaneously combusted..." I said.

"Should be," the technician said. "We just can't see them. If they need to, they'll do a CT scan to get a look at them." She gave me a towel and told me to clean up and get dressed. When I did, she showed me where to dispose of the towel and hospital gown, told me she'd fax the results to my endocrinologist, and said, "Goodbye."

I almost started crying on my way out to the waiting room. In the parking garage, I accidentally walked up one flight of stairs too many, and when I got back to the correct level, I almost walked right past my car without seeing it.

26 comments:

Heather Meadows said...

Thanks *hug*

Anonymous said...

Did you have the cat scan? The same thing just happened to me. The ultra sound showed my left ovary missing and the cat scan showed both missing. Weird! I will be following up with a gyno in a couple of weeks.

Heather Meadows said...

I didn't get the CAT scan. I don't remember why not. I assume the ovaries are still there, because I have periods now ;>

Anonymous said...

Ladies,
My doctor discovered my missing ovary and fallopian tube at age 29 during the c-section of my 2nd child. I had multiple sonograms and vaginal probes prior but was continually told the ovary was hidden. There is no problem getting pregnant, just in carrying a baby to term. My uterus only expanded half way. It is very important that you find out if your ovary is missing and if you are also without a kidney on the same side. My ob/gyn told me that I would start menopause before 40. She was right, I started menopause at age 38.

Best of luck....Ann

Anonymous said...

I just went through the SAME VERY EXPERIENCE! Can you tell me what the outcome was? No one seemed worried about it and I have not heard from my doctor as yet.

Anonymous said...

Hi, I went for an ultrasound on Monday and was told everything appeared normal. This morning I received a letter from my doctor to say they couldn't find my left ovary but may be a technical fault. Can't seem to find much about this on the internet. Would love to hear any help you have as I am quite worried. Is it common that ovaries can be hidden/missing?

Heather Meadows said...

I have no idea how common it is. The technicians weren't worried a smidge about mine, so I would guess that it happens often enough that they know it usually isn't a problem.

I do know that the larger you are, the harder it is for scans of this nature to penetrate through to detect your ovaries, which could have been an issue on my regular ultrasound...but I don't think that would have been the problem with the vaginal one, so I honestly don't know what the deal was.

The reason I was having the test done was because I stopped having periods after having cancer in 1997-98. They started up again on their own in 2005, and I've been having treatments and tests on and off ever since.

Anonymous said...

It's interesting to see that this appears to be so 'common' as to not upset the technicians but this is the first time for the internal/vaginal ultrasound and i can tell you it was very odd to hear they cannot find something that should be there! The only question the technician asked was if I had an operation before - which was no. I couldnt get another word out of him. The results were sent to the doctor's office and i assume by now he would have seen them - therefore if i dont hear from him by tomorrow I will call to find out what the deal is...i dont want to panic but as i get older (i am 33 yrs) the female body seems to do some strange things as the years go by. Can you believe that we didnt know about 'missing' parts before this? Our mothers and other females have kept these things secret! I will keep you posted

Sheena Rosenlof said...

I had a similiar experience, I have had many, many ultrasounds in which I was told that I had cysts on my ovaries!!! I went on to get pregnant and have a completely heathly but premature girl. Then it was suggested that I have an exploritory laporoscopy to take a look in side of my belly. After awakening in recovery they tell me "dear, you only had one ovary and had a very sick fallopian tube." I guess my tube was so infected that it was all coiled up and was being mistaken for my overy in all of my ultrasounds. In which was also removed. They can't figure out whether I ever had an overy or if I was just born without it. So now I am a young 21 year old with only my left overy and tube. Some time later it was recommended that we go back in and have another look. This time they discovered that my uterus was now stuck to my right side, were my right fallopian tube was infected and pussy. The doctor and surgeon seem to think that it must have left a tacky spot. They carefully scrapped my uterus off my right side and stapled it back in place. But now I worry about what future problems that is going to cause me. What is going to happened if I am ever able to get pregnant again. How will a uterus that is stapled in place going to grow and move???

Rachie said...

Hi i had a scan about 3 weeks ago, same as youself extensive internal scan. And i as told that they couldn't find either of my ovaries! which is strange as i have a 4 and a half yr old girl! i was also told my womb is tilted and that i have endimitriosis, which aparrently i have had for 2 yrs but everyone neglected to inform me after i had a lump removed from my womb 12 months ago! i swear that the people at the hospital are all born with no emotions, and i really want to know whats goin on but they won't bring my appointment forward! i hope the endimitriosis isn't too progressed as i really want another baby!

Anonymous said...

I went in to have an ultrasound on the 16th of September. I told my doc about a lump that I could feel in my abdomen and have been able to feel for the last at least five years. I kept on pushing it off because of my fear of doctors. Well, when I went in they did both vaginal and the external ultrasound. She told me that I have a lump about the size of a baby's head just to the left of center on my uterus. Also, she told me that my left ovary was nowhere to be found. She told me that it was likely to be just a cyst as it has the consistency of a water balloon. I'm so frusterated because she wants to wait five weeks to see if the lump goes away and my ovary appears. I have all these questions and no one to ask. She said its too big for laproscoptic surgery so I will have to have a long incision surgery. hip to hip. I am so frightened. She won't tell me any details and my family is trying to be supportive by not talking about it and if they do its always "upbeat". I just want to talk about it and figure out all the possible outcomes. Not sugarcoated. Can someone tell me anything???

Anonymous said...

My wife has missed her period for the last two months and so naturally we thought she was pregnant. THe blood and urine tests said otherwise so we were scheduled an ultrasound. The tech said that she couldnt find her left ovary and I dont really know what to think from here. They said the results would get to the dr. in about a week, but its hard not to know what is going on. My wife is only 25 and never been pregnant but began her period at the age of 12 and has been on birth control ever since. Just wondering if anyone has experienced anything simillar and has any insight. Thanks

Anonymous said...

I have been having intense left side/ abdomen pain since january 15. I had an MRI of my abdomen, which revealed gallstones, cysts,a spot on my lung, and diverticulosis. however, none of those explained my pain. Since i had experienced a huge trauma in my left hip and leg as a child, my doctor sent me to an orthopedist, who ordered an MRI. In the meantime, my Dr also ordered both types of Ultra sounds. I went back to my orthopedist today who let me know that the test showed several abnormalities, the biggest being that my left ovary is nowhere to be found. He asked me if I have ever had it removed or had mass trauma on that side of my body. I have, when giving birth to my first child after a horrifying and tragic car accident. Can any of you e mail me at Kimberly.freiberger@aol.com and let me know if your ovaries were ever found?

Carol9999 said...

I have had increasing pain on my left side every other month during what I figured was me ovulating.I finally went and got the ultra sound..both internal and external ,,and guess what>? I get to join the club too! no ovaries!Im 47 and have two kids 11 and 13. I have a sneaky suspicion this is more common than we think. I wonder where they go?

minime said...

I am 47 with 3 kids, had to be rushed into Spanish hospital last month whilst on holiday as hemorraghed, had transvaginal ultrasound; gyni couldn't find my left ovary,which was where I felt the most pain from. (the examintion was uncomfortable but not terrible, and I was just glad someone was trying to sort me outHe gave me high progesterone and methergene to stop the bleeding enough to get me home.Since then I have had so many tests back in UK, including an external ultrasound(still no left ovary),blood tests, hysteroscopy, biopsy and D&C am now waiting for results of the D&C which was done on Thursday last week. I am hoping it will just be DUB and they can fix me. It is strange that it seems to be a problem with the left ovary going awol, maybe there is some other organ on the left side which blocks the sound-waves?

Anonymous said...

Pleae help me! AND THANKS FOR THIS PAGE! We have not been able to get any help from doctors.... and we have been to see many of them, my daughter has had many many scans and tests. HERE GOES OUR STORY... my daughter is now 23 years old. Last February when she was 22 years old she was rushed to the hopital at 3 a.m. and had to undergo emergency surgery. The doctor said that her right ovary was twisted three times and black and dead, and that if they had not removed it then she would have died. They told me that they could not find her left ovary. WHAT HAPPENED HERE?? Can anyone help with answers??? She had been having severe stomache pains for two weeks.... but she thought it was due to some flu or gas.. she did mention the pain to me... but she brushed off going to see a doctor since she didn't think that it was that serious. The doctor put her on hormone therapy. Her periods have stopped. I cryed so much... she is my only child. Does anyone think there is any chance that her left ovary could still be there. And why would the doctor insist that she had to go on hormone therapy ... before they finished trying to find her left ovary?? they kept saying that it was not there.. but from what I am reading on this blog... sometimes the left ovary will show up.. We still have no answers as to what happened to her, and why she now has no ovaries and what happened to the left ovary... Every doctor that we have seen has no explanation. Why don't these doctors have any answers ??? This is very strange. We must keep this blog going and get answers, and get the medical profession up to speed. These doctors are not sharing information, which they should be in order to figure out what is going on with regards to womens health issues. If men were loosing their balls... you can bet that the medical profession would on top of it ditto!

1onthinice said...

After my hysterectomy 3yrs. ago... with my ovaries purposely left behind, I now have a missing right ovary. Ironically, I also have a breast lump that is the size of an ovary, but 2 surgeons have claimed the lump is simply a clogged duct. Has any doc offered to further explore where the missing ovaries could be? Have they been willing to put in writing there is no concern about a missing ovary? So many questions, so little peace of mind.

Anonymous said...

I had an MRI last week, when I hear the results, I'll leave a post.
P.S. that internal ultrasound to me was the same as having a pap test

minime said...

Hi,

I also have a missing left ovary...it didn't show on either the vaginal or external scans, I asked the Gynocologist who performed a D and C to try to stop 3 months of heavy bleeding ( I hemorahged whilst on holiday abroad and the hospital also did Transvaginal ultrasound but didn't locate the missing ovary..nobody seems too worried, although I sometimes worry that as the pain and bleeding seems to be more from the left side and the ovary is hiding, maybe it has got stuck or twisted behind my organs and that is causing me the problems. I haven't been through nearly as much as you though, I do hope you soon feel well again. I don't think the breast lump would be your ovary, maybe it is tucked behind your bowel or something. Maybe an MRI or CAT scan would find it and also put your mind at rest re the breast lump.

Anonymous said...

Hi,
I'm 33, about to turn 34 next week, and I, too just had the same experience and am online looking for answers b/c my doctors seem to have none. I had a pelvic and transvaginal ultrasound and my left ovary is nowhere to be found?! I had the exam b/c of lower pelvic pain. I was told I have a collapsed cyst on my right ovary and that it would take care of itself and there was nothing I needed to do. And, that it was likely irritated b/c of muscle strain. However, I still would like to know what happened to one of my ovaries and why I have pain there? This is very frustrating.

minime said...

Hi again.

I have been back to my gyni this week following my hysteroscopy and d and c as I had caught an infection in my womb and have been on antibiotics for a few weeks, and because the bleeding is again increasing together with the dull pain which I have where I think my left ovary (the missing one on the scans) should be.
He assures me that if they can't see it it is a good thing as disease or similar would enlarge the ovary making it more visible. He says during my op he did a manual examination of all my organs and all looked ok. The ovary sometimes hides behind the end of the bowel which curves on the left side.I do have IBS too and that might be what the pain is.

I hope this reassures anyone who is worried. I am having Mirena fitted this month which should hopefully sort out my issues. If not then Novasure is the next step.

all the best to anyone having similar probs.

Anonymous said...

I am carol9999, I dont know if it will show that..but here it goes under anonymous maybe.
They found my ovaries with an MRI. turns out my pain is coming from the release of an egg during my menstral cycle on my left side. My shell holding my eggs is hardening , so when it releases one I get pain for about 24 hours. It has a fancy name , which of course I cant remeber to type it here

PJW said...

Am so relieved I found this blog - have just returned from my second transvag. scan having been told that my right ovary is missing, and although I have been experiencing lower right pain and discomfort for over 5 months now , my gyni thinks the two things are not linked!!! I am having a pelvic sonograph in 10 days to have another go at locating the missing ovary and am seriously thinking of chaining myself to the bed until they locate either the ovary or the cause of the pain as I am getting to think I will never be without pain again!! Thanks for the postings girls - it makes me feel so much better knowing I am not alone in this - but what can we do to make these gyni's take us seriously?

Anonymous said...

Thank goodness for this forum. I have been crying for awhile.... now trying to research online. I had an abdominal and pelvic ultrasound done in October.

No one ever notified me that anything was wrong, foolish me, from now on I will always be a thorn in the doctors' sides and demand answers, either way. I always thought no news is good news with any tests.

I went to pick up the results today --- starting out with a naturopath and trying to round up some results for him --- and on one page it says that I have free-floating matter blocking my left ovary, and that they can't make it (the ovary) out. The right one is fine apparently.

I am 44, no children, though still hoping for a miracle.
Based on the home ovulation kits, I knew I wasn't ovulating every other month (though I've also been told by other doctors it's more like a coin toss with the ovulation), and I have had pain and discomfort on the left side, on and off, for 6 months.

Just reading here makes me feel better, that this might be why I was basically blown off by the radiologist and PCP.

I had a Pap and biopsy last month and everything was fine. She told me I have constipation and that's why I'm in pain. She didn't ask any probing questions and basically blew me off too. I'm sorry but what a moron (and I'm filing a medical complaint about her, but that is another story).

I'm going in tomorrow to see about getting a CT scan (recommended on the sheet that I never received), and also am getting blood test back soon for CA-125. Nothing in my family history would indicate the worst; still, this is so frightening.

I also agree with one of the posters that the interior ultrasound was terrible and went on and on. Not so much painful, just horrible (if that makes any sense).

Thank you for listening.

Anonymous said...

I too have a missing ovary! Went for an ultrasound yesterday (transvaginal and normal) and they could'nt see my left ovary. I had a hysterectomy in '97 and they took everything but my left ovary. I know its still there somewhere....its producting the hormones. I was told by a dr. who I no longer see, that I didn't need to have pap smears anymore. So I have not seen a gyn for 7 years.

My biggest worry is my grandmother had ovarian cancer (survived thankfully) before she was 40. I am 39 now. And I had precancerous cells of my cervix when I was 19. The pain and other symptoms can be related to ovarian cancer. When my gyn pushed where my ovary is suppose to be it sent me through the roof.

The tech told me the same "its hidden behind your bowel" and "I wouldn't worry, if it was enlarged, it would push the bowel out of the way." However, I have found other posts on other sites where the ovary was "hidden" but on another ultrasound or mri or ct, they found a large tumor on the ovary. So I find no comfort in her words.

Now its the waiting game to hear from my doctor. She is suppose to have the results today.

Anonymous said...

Hi everyone

I have been suffering from pain in my left side for a number of months now. It can happen between periods but gets really in tense for the first 24 hours of my period. They thought it might be endomitriosis and so sent me for a MRI, vaginal ultra sound and a normal ultra sound.

When I was having the intrusive scan the doctor couldn't seem to find my ovaries but made it seem as this was just because my bowels were in the way. She wants me to go back for a second MRI.

I then found out today, first time and doctor has been through the results of my original MRI scan that the doctor who sent the results through also could not see my ovaries and thought they may have been medically removed.

I also apparently have something pressing on the tube to my kidney which is causing a blockage.

What I don't understand is how can ovaries just disappear, where do they go? Do they just srivel up and drop off?!?!?!

I am only 29 with no kids a desparatley want to be a mom one day. Does this mean my only option is to take a leaf out of Madoonas book and go steal a child from some poor family in Africa?

Does anyone know the cause for missing ovaries and why do we get these pains if there is nothing there to cause the pain?

I am so confused.